My name is Margaret Krutli. After having an MRI, due to a seizure, complete agenesis of the corpus callosum was discovered in 1995, at the age of 40. At the time I had been married for 18 years, had 2 teenage children and was primary carer for my sick mother. I also had a part-time job, which I gave up soon after. I also did a few hours of voluntary work a couple of days a week.
I grew up in country NSW and after school did tertiary studies in secretarial studies. I then got a job in a small business doing customer service, clerical, banking and other tasks when required. After getting married, we moved to Adelaide, SA, which has been our home since 1977. My voluntary work included primary school, cricket club, aged care and public hospital, over a period of 30 years.
When my complete ACC was discovered, I felt a “weight” lift off my shoulders, as it explained many challenges that I had in my growing years, especially at high school. It also explained why I can’t do certain tasks very easily, my lack of spatial awareness and multi-tasking.
I have always been interested in any research about this invisible disability, the genetics and why this occurs. I am interested in the heterogeneous aspect of the disorder and how we can help the community of those with this disability to live a fulfilling life supported by the professionals and the community with a DCC.